This weekend started out bad and just got worse, but thankfully it got better on Sunday!
I started on Thursday complaining that my heart rate was jumping up way too much upon standing up. The "normal range" is an increase of less than 30 beats per minute going from a laying position to an upright position. This is the goal we try to keep my heart rate in, with medications of course. I normally do pretty well with that goal and only increase between 10-20 beats which is really good for me and even considered normal! On no medications this increase can be up to a 60+ beat increase just from standing up. This weekend it was going up at least 35 and up to 51 beats simply from changing position and this was with my medication to lower/regulate my heart rate.
As the weekend progressed my blood pressure also plummeted! I have no idea why and I was extraordinarily close to going into the ER. I felt truly awful and no matter what I do I couldn't get the numbers to come up. Generally I push the fluids and salt and I can get the BP to come back up. Now keep in mind a lot of people have low pressure with no issues, but for me I get extremely symptomatic. Also, I take 2 medications and 2 supplements specifically to raise my BP, so when I have low pressure that is on top of all these efforts to raise it! My numbers were down to numbers like 91/53 or 85/60. Both of which are much too low for me! I felt extremely fatigued, nauseated, shaky, and generally icky! I don't know how to describe it, but it truly is an awful feeling!
Anyways, I have no idea why it happened or what I did to make it better, but it is gone now! I just took my blood pressure sitting down and it was 107/75 with a heart rate of 66 :) these are perfect numbers for me and I am feeling much better now!
I will keep track of my blood pressure numbers for a while and email my neurologist to see what his thoughts are. He has offered me another medication to add to my cocktail if I need it to raise my BP, but I am not sure I want to add in another medication! He has also offered me a stimulant to take to help to decrease the brain fog. I am thinking I need to take this one because school is becoming increasingly more difficult to concentrate because I can't seem to get through the mental fog to focus.
I will let you all know when I hear back from him. Still waiting and praying to hear back from The Chiari Institute! They review cases on Monday's so hopefully I will hear back tomorrow, but I am not hopeful. I would guess it would be another couple of weeks before I hear back from them, so please keep praying for me and my appointment!
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