Appointments gallore

Wow what a week it has been! My family and I have started to get travel plans in order for our trip to NY for my surgery. That has been stressful in itself, but there are still a million other things I have to do besides that.

I had an appointment with the general surgeon who was supposed to put in my port on the 21st of this month and lets just say it didn't go as planned. He totally overstepped his boundaries in my opinion and decided that I did not need the port. He was very confusing and just kept talking in circles! Long story short he said he absolutely would not put the port in for me if I was going to do the infusions myself and that he didn't think i was "sick enough" to need the port. He doesn't know me or my medical history so it is not really up to him to decide that! I went straight to talk to my neurologists nurse who is PHENOMENAL!!!!!! She was not happy at all that he said that so we are working on fixing this little predicament. She did find a home health care company that will deliver my supplies and have a nurse teach me how to do the infusions and do them for me at the beginning at what not. We are waiting to hear if the surgeon will agree to doing to port now that we have this company to do it and has talked to my neurologist again. I am not sure if the port is still getting put in on the 21st of this month or not... I will update again when I hear back from my neurologists office.

I made an appointment with my orthopedic surgeon for a follow up on my wrist just to make sure everything healed well and that I am cleared to do everything again. I have had zero problems with this recovery so I am anticipating a full release from him until the next joint goes out :) I also made an appointment with my PCP (primary care provider) for pre-surgical clearance for my fusion surgery in NY. That appointment will be on December 12.

I was prescribed compression stockings which are basically tights that squish your legs really hard in order to send the blood back up to the brain from your legs. I was able to get those locally and hopefully my insurance should cover them which is wonderful. These will be really helpful for long days on my feet and flying to NY. I need to also get a cervical collar for the flight to NY, long car rides, and post surgery. This is a stiff collar that will immobilize my neck. I will have to wear it for a couple months or more after surgery. I just need to find someone who will fit it for me in my area.

I will update again shortly I think! Hope everyone is doing well!