Living the Chronically Wonderful Life: POTS, EDS, gastroparesis, and Chiari

Let’s start off on a positive note! The shunt I had put into my brain to drain my spinal fluid has been phenomenal! We...

Hi everyone! The neurosurgery saga continues! This is a long update, so if you have any questions please let me know!  If you a...

Merry Christmas everyone! I know it has been a long time since my last update and I have had a number of people ask how I am doing. Overal...

I just wanted to give a quick update with the date and details of my upcoming craniocervical revision surgery. My surgery will be this co...

So I have failed miserably at updating everyone recently! I had finals for school (which went very well!), family came in town for Th...

After discussing in depth with my phenomenal neurosurgeon we have decided to go a different route than what I had expected to deal with my h...

As I mentioned in my last post I have been having terrible headaches the past several months. They are different than the headaches I had be...