Hey all! Well since my new insurance (which is AWESOME) kicks in April 1st I have started to make some appointments. I have an endocrinology appointment on April 2nd to finally get my thyroid issues addressed as well as some other things checked and an appointment with a rheumatologist who specializes in EDS on April 1st. I still want to see the geneticist who specializes in EDS that I am on the wait list for, but I was just informed that the wait to see him is now out until next march (approximately 15 months from when I got on the wait list) we wanted to see someone a little bit sooner since my EDS isn't really being addressed by anyone right now. Those will both be done at Rush University where my neurologist is.
I also have an appointment on March 20th with my orthopedic surgeon for my right wrist. It has been hurting me a lot lately and I can't do anything with it without it being in pain again. Things like brushing my hair, turning a door knob, pushing open a door, or using a can opener put me just about in tears. I picked up my 4 1/2 pound rabbit the other day with two hands (with my brace on) and it hurt my wrist so badly that I was in tears. I am back to being in my wrist brace 24/7 now. I am not sure why it is getting worse again, but hopefully my surgeon will have some ideas.
I still need to schedule an appointment with a GI doctor for either April 1st or 2nd. I also need to email my neurosurgeon in NY. I have a couple of questions for him and I am pretty sure I also need to schedule my follow up scans and Skype appointment with him. I will let you know what he says and when the rest of my appointments will be. So far there has been no change in my port so we should be able to wait until April to get it fixed. Oh yeah, I need to schedule that appointment as well!
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