Tuesday, March 4, 2014

Port issues

So I have had absolutely ZERO issues with my port since I got it until last week... I went to access it thinking no big deal I've done this a number of times super easily now! Well my nurse and I decided we should let my husband try to access it since he has never done it before and that way he knew how just in case I needed help ever. Well he struggled, which is normal trying to access it for the first time, but what is strange is that he could not get my port to pull back or to flush. This has never happened before so after a few tries I decided to try it. Well I had the same issue... After attempting multiple times the nurse finally tried it and she had the same issue as well! She finally figured out that my port is tilted! Well we obviously thought that that probably was not a good thing, so we contacted my surgeon who put it in. Meanwhile it continued to tilt further until the right side can actually touch back against my rib cage and the access point faces towards my shoulder. He got me in for an emergency appointment today at 2 o'clock. Well as I expected he wants to make a trip back to the OR to fix it.

Since it is still working right now, just difficult to access, we are going to hold out until I get new insurance on April 1st. The problem is that then this doctor is not covered by my new insurance :( He gave me the name of another local surgeon to work with, so hopefully he is able to get me in! I will update again very shortly with news on lots of appointments and goings ons. Please pray that my port continues to work so that we can wait until April to get it fixed!!!

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